So far the new Ontario Autism funding program has been quite confusing for my family. Let me preface this by saying, that even though my son is on the Autism Spectrum, and the psychologist describes his autism symptoms as severe, we have received no real funding from the Ontario Government. For various reasons we have never been on any list for funding, being screened out for any therapy and never put on a waiting list for any future programs.
When the new funding model was proposed a while ago, a great furor erupted in the Autism community. It was very vague on how funding was going to work, and many folks were hearing they were going to lose funding as the budgeted pot of money would be shared with more families, in an effort to reduce the wait list.
For my family, we shrugged our shoulders, as we didn’t get any funding, we could only watch with envy finding out families were receiving upwards of 50K per year. After encouragement from our psychologist, we decided to play along with this new system. My wife is the one doing all this work, I am simply documenting it.
We called about the new program in April, and were told forms would be coming to us in the next two weeks to fill in. The forms finally showed up in June (after a lot of follow up e-mails and phone calls). My wife dutifully filled in the forms (the day they arrived) collected all supporting documentation and we scanned and emailed them back (that same day).
Near the end of August, we received a registration number (an exciting number) and a letter assuring us we are in the system. The wait list for getting a budget will be another 18 months, so again, we wait.
Autism Funding : Better? Worse?
If I see any moneys, I will be astounded. I realize there are folks who really need the money, and I hope they are getting it.
Currently I pay a great deal of my income for my son’s education and other needs he has. I get a little help with tax credits (after a lot of arguing with the CRA), but all the money that I am out of pocket is crippling my financial plans. I cannot retire, even though I can get a government pension. Still we cannot afford all the help my son needs (occupational therapy, social interaction help, and other areas).
With all of that, we are lucky. My son may end up living independently, but I have to spend money now to make that possible.